Scanxiety

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This post, we share thoughts on scanxiety. You know the feeling–it’s ok; it’s not ok; when will they call?; they called, is it good or bad? Here are some of our favorite bloggers on the topic:

 

 

 

Screen Shot 2016-07-07 at 11.44.50 AMFrom: Heather Lagemann

Blog: Invasive Duct Tales

Blog Post: Scanxiety

“So the other doctor mentioned doing a scan or ultrasound or something to follow my left armpit,” I mentioned three months ago…”

 

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From:  Steve Pake
Blog:  Testicular Cancer Awareness Foundation Blog
Blog Post: What Cancer Surveillance and Scanxiety Feels Like

“On the eve of my 4 year check-up for cancer, I rather foolishly clicked on a news video link of Virgin Atlantic Flight VS43’s emergency landing in Gatwick last December. I’ve watched emergency landing videos before, but this is just asking for trouble around surveillance appointments, and I should have known better. As the Boeing 747-400 came down without its starboard main landing gear deployed, and with emergency vehicles lining the runway that were prepared for the worst, it was as though all of the collective fear, anxiety, and tension of the passengers on-board that aircraft found a way to channel straight through me. I could relate to this so well, because I know exactly what this feels like, and it’s how I had already been feeling at the sub-conscious level. This is what I’ve been going through for 4 years now, over and over again, as an ‘S.O.S.’ cancer patient, “stranded on surveillance…”

 

Screen Shot 2016-07-07 at 1.56.07 PMFrom:  Melissa Rieke

Blog: Melissa Rieke Photography

Blog Post:  Scanxiety Life After Colon Cancer

“Monday came.  I went to SMMC and had 3 tests scheduled.  They were great and fast, I was only there for 2 hours and had an MRI, CT scan and blood work.  I had to have IV dye contrast for both scans…and they were so nice to leave the IV in so I didn’t have to get poked multiple times.  AWESOME!  Then the waiting began…and here are my tips to get thru that…”

 

Screen Shot 2016-07-07 at 2.25.05 PMFrom:  Heather von St. James

Blog Post: The Mesothelioma Cancer Alliance Blog

Post:  Scans + Anxiety = Scanxiety  My Biannual Checkup in Boston

“…When I got there, I immediately went to bed. I had noticed I was short of breath walking through the airport and through the hotel. I convinced myself that my mesothelioma cancer was back. I prayed a lot that night and prayed hard. I got up early the next morning for my CT scan and my scanxiety level was the highest it had ever been…”

 

Screen Shot 2016-07-07 at 2.16.55 PMFrom: Sabrina

Blog: Cancer Girl Smiles

Blog Post:  Coping With Scanxiety

“My oncologist and I have a good relationship. She spends time chatting with me, and she had been rather upbeat on previous visits (as my prior results had been boring, just like we liked them). However, this day she came into the room with a look of despair in her eyes. Almost like a grim reaper of sorts.”

 

 

 

 

2 Comments

  1. Avatar
    Ilene Kaminsky / September 7, 2017 at 11:36 am /Reply

    I have posted on scanxietty in my blog http://cancerbus.com
    Currently avoiding my next PET because the stress in my life is at an all time high. My liver, my vertebrae, my lung, besides the rest of my bone mets are feeling awfully suspect due to a partner who refuses to treat his anxiety and depression and it’s not easy to “just move out” like everyone seems to advise! Oh yeah, I’d live to see anyone with metastatic breast cancer move and uproot their lives alone – there’s no easy answer!

  2. Avatar
    Private information / September 12, 2019 at 4:13 pm /Reply

    My husband and I have been riding the cancer treatment roller coaster for over two years. Overnight, we went from being normal and happy to constantly stressed and in my husband’s case, constantly sick and in pain. Not from the cancer, from the cancer treatment. We both have times when we wish he’d never had that routine colonoscopy exam. Ignorance was bliss!

    Now, we constantly cycle through the emotional upheaval of chemo, radiation, surgeries, a stoma, scans, blood work, and the ill effects of drugs that are supposed to make him feel good. The avastin he’s taking has him in an artificial remission but we both know the next scan could show more cancer and an end to that ray of hope. The worst part is that neither of us has anything to look forward to as the cancer progresses. All our retirement dreams are gone as he endures this barbaric treatment. It’s also painful to watch our savings dwindle as co pays get higher for more advanced drugs.

    Neither one of us wants to end treatment but we’re emotionally beaten from this so called battle that can’t be won. One day, people will look back and wonder how anyone could submit to being burned out by radiation, chemo and dismembered by well meaning surgery. If we had it to do all over again, he would have skipped cancer treatment, taken pain medication and set up doctor assisted euthanasia in one of the States that allow it.

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