Today as I am writing this blog, I am in Scotland attending a music festival that I have been attending every January for the past 17 years. When I first came t…
Since bringing my 89-year-old mother-in-law, Ivalene, home from the hospital where she was diagnosed with pancreatic cancer, we’ve been hit with the upper respiratory crud. The most energy I’ve expended this past week has been heating up chicken noodle soup and making mugs of TheraFlu and throwing a fleece blanket into the dryer to tuck around my chilled mother-in-law.
The blanket-in-the-dryer idea was something I did for Hubby back in the days when the chemo—which wasn’t a cure for his late-stage prostate cancer, but was meant for palliative care—left him chilled to the bone. Hubby would groan in absolute utter sheer bliss every time I spread a dryer-heated fleece blanket over him.
I took my mom-in-law to her first and only visit with an oncologist. No surprises—she has declined treatment—but it’s now official and a referral has been made to hospice care.
Ivalene is defiant courageous plucky independent no-nonsense. And she passed this down to all her children.
Back when Hubby’s second nephrostomy tube fell out, our hospice field nurse, Melinda, indicated he had 24-48 hours left. “Renal failure,” she said.
But 24-48 hours came and went. “He has tenacity,” Melinda said when she stopped by the house again. “He’s broken all the rules. Maybe there’s still something he wants to teach us.”
Hubby had defied the odds since time of diagnosis. He lived ten years with late stage prostate cancer that had spread to the lymph system and eventually to the bladder, bones, liver. He shouldn’t have lived that long.
“Maybe what he wants to teach us is this sitting still and acknowledging all that is precious around us,” I wrote in my journal back then. “This slowing down. This drinking in peace. These young adult children who have come long distances. The meal that will be delivered by friends later this evening. Snow falling.”
Hubby’s medical needs eventually became more than I was capable of handling at home, and a bed opened up at Hospice House, which we gratefully accepted. He did not come home from Hospice House.
This thought from Ashley Davis Bush:
“We live in a world that doesn’t like pain. We too might be tempted to turn from it, to keep the stiff upper lip. But grief asks us to touch pain, to sit with pain and to ask it to tea.”
I have touched pain and sorrow; I’ve sat with it and shared my Chai tea with it. And I have come away from the encounter more compassionate tenacious resilient belligerent pertinacious.
Ashley Davis Bush goes on to say:
“Being with your sorrow is brave. It is counter-culture courage.”
Hubby had counter-culture courage. Mom-in-law has counter-culture courage. As for caregivers everywhere, you know that it takes counter-culture courage to walk beside your loved one as he/she journeys toward death.
My best advice from my failures and successes as a cancer caregiver: Wrap that courage around you like a fleece blanket warm out of the dryer. Take one day at a time. Accept help. Let people love you as you travel this particular noteworthy distinct sweet heart-wrenching care-giving journey. For you’ll never travel this exact journey with this exact person again.
Tari Prinster is a cancer survivor, master yoga teacher and author. She is the Founder of Yoga4Cancer, LLC (y4c) and the Retreat Project (nonprofit) – businesse…
I recently had a conversation with a patient who was experiencing panic attacks. If you’ve never had one, let’s just say I don’t recommend it. It is a kind of e…
In 2004, Marlys’ husband, Gary, was diagnosed with late stage prostate cancer and given two years to live. The couple established a non-profit — Cancer Adventures — and presented at a variety of venues across the country including the National Cancer Institute in Bethesda, MD, sharing what they were doing to live well with terminal cancer. During that time, Marlys also wrote a book, Cancer Adventures: Turning Loss into Triumph, featuring 28 cancer heroes who had established purpose and meaning, and found a way to give back.
Gary lived 10 good quality years with terminal cancer, much longer than the experts predicted. After he died in November 2014, Marlys took an early retirement from the St. Charles Cancer Center in Bend, Oregon, where she served as Survivorship Coordinator.
She is in the process of procuring a literary agent for her newest book, a memoir highlighting the lessons cancer taught them about living and dying well. While her story is one of setbacks, Marlys knows she has a greater purpose in life — a passion for showing people how to navigate life’s challenges, tenaciously and with heart wide open.
Follow Marlys on her website Cancer Adventures.
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